Катя Климишина. Помощь Ребенку: Справка об инвалидности

Кате прописали самое дорогое лекарство в мире

после прививки от полиомиелита Катя серьезно заболела. Диагноз: атипичный гемолитико-уремический (аГУС) синдром. Это очень редкое и тяжёлое заболевание гемолитико уремический синдром. К сожалению, эта болезнь грозит внезапной смертью ребёнка.

Давайте поможем собрать средства на лечение ребенка.

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After a polio vaccination my daughter, Kate Klimishina (2 year old), became seriously ill, she was diagnosed with atypical hemolytic uremic syndrome (aHUS). As you probably know, this is a very rare and severe disease, which can result in death or severe impairment of the vital organs. Kate was also diagnosed with acute renal failure, arterial hypertension in the 2nd degree and she is on permanent peritoneal dialysis.

According to the doctors there is a high risk of aHUS relapses resulting in chronic renal failure. Considering the difficult treatment for aHUS, the high risk of developing life-threatening conditions and end-stage chronic kidney failure the child needs the life-saving ECULIZUMAB (SOLIRIS) therapy.

We have very little time - the medicine needs to be injected immediately. Initial course - 600 mg per week, then 300 mg in the second and third weeks - and then 300 mg once every 2 weeks during 1 year. In Russia one vial of the medicine costs RUB 320 000 (1000 $) and for the initial therapy my daughter will need 8 vials. For the annual therapy Kate will need 30 vials in total. Total sum 9.600.000 RUB (300 000 USD).

on 2012/04/08 we raise funds 2560868.389 RUB (about 80 000 USD =26 % )

Страницы

2012/03/23

Справка об инвалидности

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